1/26/2018

Being off the Rotoprone was a big step. His eyes aren’t as puffy but his hands and feet have a way to go.

I just wanted to show you his peacefulness. It sure did my heart good seeing him today less puffy. And not struggling for air. I have to gear up for that this afternoon.

The ventilator wasn’t ‘off’ off yesterday, it was just on a setting to allow him to do a little more work breathing in the process of weaning.  So, yesterday he was only allowed two hours. After which they switched him back to the original setting; machine doing the work.

As I said, it was excruciating to watch him learn how to breathe again.

They change the settings to weaning once a shift.  Yesterday, he lasted almost two hours. And last night he only lasted thirty minutes.

Ok, so he is on a sedative, and a pain med

They tried to lower each med to see what he could and couldn’t handle.

Although he made forward steps yesterday, today is being played out a little more cautious.

Not necessarily a bad thing. It’s just the process.

Apparently, in the process of weaning last night, he reacts a little more panicked and breaths too fast. Which is why they turned the sedative back up ‘just a little’ to try and calm him. As well as the pain med.

It’s just the process.
The excruciating process.

He is still fighting for his life. Maybe a little too hard which causes shallow breathing and panic.

May he calmly move forward with the greatest of passion...

This will be the third Shabbat without Daddy.
My boys, especially the youngest is having a hard time. I did NOT want to leave him this morning. I’m always torn between the two.

And Hannah, the ‘take charge’ girl. She has tried to figure out passwords and what gets paid on line and off line. She has had to change some passwords because she couldn’t ‘break Daddy’s code.’

She has made a log in/ password sheet as not to forget and for Daddy when he comes home.

She called me one day this week and said she was just going to go ahead and pay the mortgage. And I was like ‘wait for me, too!  I want to see!’ In the end, a day passed and she did it all by herself. Granted, she will be 23 next month, and I never doubted that she could. We just like to use we are big girls or we did it all by myself. Because some days being an adult is so hard. I speak for us both.

It’s quiet in his room and peaceful. He needs his rest for later when they turn on the setting for him to  ‘work.’

His new job: breathing.
Hopefully he will do well.
It is on the job training and he is usually a quick study.

Love love
David’s shelli.