Wednesday, May 30, 2018
My Turn...
Tuesday, May 29, 2018
Sad reflections revisited.
It starts in his toes
he still laughs,
His face is smiling,
I can’t hide under my covers.
Our partnership is lopsided
Jono cries every day.
No more running to the store for me
Everything is gone.
And all I want to do is
And his boss wants to terminate David
This must be what hell feels like.
I’m so full of tears
It’s quiet.
The only time of day it’s quiet.
Early morning.
And Its Shabbat. The silence is so loud.
My name is Bruce. And I’m bringing u down.
Saturday, May 26, 2018
Visits
It’s not that we don’t want visits.
XO
Shelli
Thursday, May 24, 2018
Hannah, the brave
May 24, 2018
Honors class essay
Someone once said,
“Courage is not the absence of fear;
but action in the face of fear.”
There are a lot of different types of fear—
but the worst is a prolonged fear,
waiting for the other shoe to drop—
for the seemingly inevitable to happen.
It grips you in the gut,
and won’t let go.
It washes over you like a dark cloud, drowning any bit of happiness.
You feel like you are being
shoved underwater,
and your lungs are bursting
for a fresh breath of air.
And yet,
somehow,
one finds the strength to continue.
Somehow in the face of terror
we walk on.
It feels as if we are stuck
in an alternate reality;
a place in between the present and the future. An alternate universe
in which what is down is up,
and up is down.
I have found that
true strength is often hidden from view:
not revealed until it is needed.
It then leaps forth,
allowing us to do things
we never even imagined we could do.
Lying dormant
for all the time when we didn’t need it…
and then it is here,
when we least expect it…
Pain and fear
are often debilitating emotions,
but strength trumps both;
surrounding them in a
protective cocoon of armor.
When we go through hard times,
the pain and fear come in waves,
but the strength is there,
underneath it all.
Undying; Unflinching;Unmoving.
Three months ago,
my dad became very ill.
He was taken to the hospital
where he was put into a coma.
My dad is tough.
Being an Ex-Marine,
he is not a baby when it comes to illness,
but this time was different.
He is the rock in our family.
The only one to work,
the person who takes care of the bills
and the checkbook.
He always makes sure we are
safe and secure and happy;
taking any unnecessary stress upon himself. He is the most selfless person I’ve ever met.
I have never been more
afraid than I was that day
when he went to the hospital.
It was the worst fear
I had ever experienced.
It lasted and lasted.
A feeling
deep in the pit of my stomach
grabbed on, and wouldn’t let go.
It seemed like stepping outside of oneself.
The pain didn’t seem real.
This was not happening.
It couldn’t be.
I remember when he was in a coma,
on life support.
I could hardly even look at him.
It hurt to see my dad like that.
Big, strong, brave dad.
He was none of those things.
He just laid there in bed—asleep;
a shell of his former self.
Tubes sticking into and out of
everywhere imaginable:
looking so fragile,
weak
and sick.
His breathing didn’t look normal.
Mechanical ventilation
made his chest move
up and down
in jerky, unnatural movements.
Three months later,
he finally came home.
He is still so weak and fragile.
He can’t walk for more than
four to five minutes without oxygen
and having to sit down
and rest for a good ten minutes.
But we are beyond relieved
to have him home.
People told me—
when he was so very sick—
to be strong.
Strong for my family;
strong for myself.
But I felt so weak,
and yet at the same time,
stronger than I ever had before.
I was afraid,
so immeasurably terrified.
The strength that comes with the fear
is a different kind of strength.
It isn’t a loud cocky-strength,
but a quiet confidence
that builds up from the floor,
into the place you need it most.
My heart felt, and still feels heavy;
shook to the core
and broken into a thousand pieces.
But I know it will mend,
and the places it was broken
will be stronger than it was before.
The scars on my heart
are proof that I have lived,
and lived fully.
Through this challenging time,
I have learned
that I am stronger than I think,
and braver than I believe.
So here we are,
Full of pain,
hope,
and courage…
and we go on.
There is no other choice.
Love, Mashoo
Friday, May 18, 2018
Role reversal of sorts
He is.
But he puts on a good show
that he is strong.
And he is strong,
This week,
he took over homeschooling.
What a load off my shoulders.
If we put them in school,
can you imagine
ALL THE GERMS
they might bring home.
And, frankly,
David is so frail
that we cannot risk that at this point.
And so now,
Someone asked him
‘Are you smart enough
to teach homeschool?’
Answer?
No.
Nor am I.
But we have excellent curriculum,
the internet,
and children who love to learn.
Our main job
was to teach them
to love to learn.
CHECK.
They do.
We put things before them?
And they go forward.
Are they smarter than us?
YES! Thank G-d!
It had been our desire all along.
Do they have more wisdom than us?
No.
Hands down,
we have them beat at life experience.
So we help each other.
And they are ok with that.
They teach us the smarts?
We teach them the wisdom.
Sounds a little illogical.
But, hey, it works.
David taking on homeschool means
I can actually accomplish my goals
and have some change left;
more time for library trips,
cooking and art lessons,
reading aloud and
creative writing with the boys.
David is in charge of
Math
Science
History
Internet/computer
(Khan Acadamy.com)
I have extra time I need
for money management,
lawyers,
doctors,
health
and meals, etc...
and extra curricular with the boys
that I have always longed to do
but find it hard
to make the time
on an average day.
David is exercising as much as he is able,
and yet his countenance is sad.
It hurts to look at him.
Choices.
We can either turn away
from things that hurt,
or we can embrace it.
So easy to turn away.
And I can’t say
that turning away is very tempting.
But, I am trying to embrace it;
be ok with it, etc...
we ALL are.
Who doesn’t want to
‘fix’ that which is broken
without calling the handyman,
so to speak.
It’s the one thing
that crushes my heart.
To be there for him
without having the answers...
ya, not comfortable.
I am learning how to embrace it,
I’m tenacious, (David says so...)
He has never given up on me.
He has lead the example.
And I am determined to give him
As much as he has given me.
An impossible feat.
But I will spend my life trying.
Imagine, if you will,
being the most amazing guy ever,
providing for your family
and being their stability
and their all
and then suddenly
without any notice,
not being able to take back the reigns
after being incapacitated.
If you see him smile or ok?
Ya, it’s him accepting his predicament.
Does he always show this side?
No. Not to the ones he can be himself to.
And to say there are no dry eyes
on any given day
would be an honest evaluation.
Not much has changed.
We are just all trying to adapt.
But, it’s much better having him home.
Much better...
However,
His sad eyes
crush the toughest soul.
And through his happy smile
and sparkly eyes?
There is sadness.
Don’t let the happy attitude
deceive you.
We are all still learning.
No disability check yet.
May doctor visit and X-ray coming up.
Hannah is signed up for fall classes.
Matt is practicing SAT so he can have the chance to get a full ride to UTD.
Hannah in the process
of requesting scholarships
based on her grade point average.(4.0)
And did I mention?
All her teachers love her.
It’s not surprising. She is an amazing girl. And jono?
He has much more of a chance for greatness with Daddy in charge of his education.
It’s so comforting
watching them learn together.
And jono gets to practice cooking with me.
He will be an amazing chef one day!
His wit and charm
Brighten the cloudiest day.
But even he has sad days.
He is most like dad
And can hide his sadness
behind his twinkle.
But momma has super power vision.
Not much gets past me.
Never mind.
It does. I’m slow.
But eventually I get it.
I hate that I’m slow....
Better late than never?
I hope that counts.
PPS
And me...I’m hanging in there.
I am having some back issues
and trying to take it easy,
as much as I am able.
(Debilitating pain some days...)
My family is amazing.
I don’t have to do everything.
We all share the load.
What would I do without them...
And on we go.
Thank you for you.
Happy to not be alone.
Back to work.
XO
Shelli.
Monday, May 14, 2018
Note:
Hannah
Every second counts
was the first holiday
we could celebrate
at home; with David.
he came home,
both Matt and Jon
were at the hospital,
while Hannah and I
to come home.
We also prepared
a birthday celebration
He is a fan of Star Wars
Hannah made a cake
in the shape and design of BB8,
while I blew up balloons
the dining room.
A welcome home
AND a birthday.
What a happy day...
Now
we have
celebrated another;
Matt grilled burgers.
Dad taught him
how to do it
from a safe distance.
A good teacher
PLUS
a willing son
EQUALS
AMAZING BURGERS!
Hannah decorated;
boys assisted.
A beautiful transformation.
Sparkly lights,
balloons,
sari’s,
and all kinds of stuff
in our decorating box.
The best thing of all?
He’s home.
I closed my eyes
and wished for
many more
holidays
with him.
Not a lot of change
since I last wrote.
He is able to walk
a little farther
before sitting down
It is a pretty scary thing
they plummet.
So we have to
monitor his
every step.
I took him to the park
on Saturday
while Hannah
was at work.
Matthew was in charge
of the wheel chair,
I was in charge
of the oxygen
and Jon was in charge
of the cane,
water bottles,
keys and such....
David walks.
His oxygen goes down
There are
60 seconds
in a minute
and he does
accomplish a lot
every second.
Besides,
than minutes at this point.
Sometimes he can
walk 120 seconds
before sitting down.
180 seconds
on a good day.
Then he sits down,
turns up the oxygen,
catches his breath
and restores his grit.
The bridge
at the park
was within eye view
from where we started.
It was obviously his goal,
he told us to push him to the bridge
We stopped right before the bridge
Seconds are long for us.
It’s what we have.
Enjoy every second
now makes sense.
The thought occurred to me
I was able to just
enjoy the view,
His salt and pepper hair
his arms resting on the rail,
and water...
beautiful, rippling water,
I think he lasted 180 seconds that time
He walked a little more
Good days and bad days,
counting seconds,
pennies,
and anything else
that sounds better
with more zero’s added.