Wednesday, May 30, 2018

My Turn...

My Turn...

I would like to start out by saying 
thank you all so much 
to everyone that has encouraged 
and supported us through this whole ordeal. 

I am overwhelmed 
by your kindness and generosity. 
Thank you thank you very much!!!
 
I am slowly improving 
physically and mentally. 
While still unable to do many things, 
I now can at least do some of the most basic things with minimal assistance 
(hopefully taking a very small amount 
of pressure off of my family).

We really don’t know 
what the future holds for us, 
but we continue to hope and pray 
that I will continue to improve. 
Only time will tell 
how much my breathing/Lungs 
will improve.  
(It is, however, 
very nice to be able to do at least 
a few things for myself. 
Even if it’s only 
a minuscule amount;)

I am so grateful for my family! 
I don’t even know how to put in words 
how much I love and appreciate them. 
This has been as hard 
or harder 
on them as it has been for me 
and I am beaming with pride for them. 
They really had to jump in with both feet 
to try and figure out my systems 
for doing all of the things that I did 
and they simply did an outstanding job of it!

I have the greatest family 
and friends ever 
and I’m so grateful to all!!

Love,
David

Tuesday, May 29, 2018

Sad reflections revisited.

I edited this post. I was frustrated when I wrote it and have had time to reflect in a more balanced way.  This blog is for real feelings, and sometimes (oftentimes) I am blunt and harsh. So I softened it a little.  Sorry for my harshness. It’s so frustrating and also easy to ‘blame’ someone. 


Xxxxxxxx
The thing I miss most 
is his infectious laugh...

It starts in his toes 
and moves up to his belly 
and explodes in deep heartfelt laughter, bringing tears to his eyes. 
Even if the joke wasn’t funny, 
you cannot help but to join him.

he still laughs, 
but with uncertainty; 
fear.

His face is smiling, 
his eyes are tearing up, 
and he can’t talk, 
but you can no longer hear him. 
He’s guarded and reluctant, 
trying to keep that big belly laugh 
contained 
or else it will end in an 
I can’t breathe coughing fit.

I can’t hide under my covers. 
I have to do his jobs and mine. 

Our partnership is lopsided 
and some days it hits me. 
And then I can’t stop crying. 
And even if I wanted to get a job, 
I can’t because I can barely walk; 
I am in so much pain. 

Jono cries every day. 
Behind his back. 
He spills on me. 
He can’t tussle with dad anymore. 
No more camping at lake texoma. 
No more Home Depot trips and fixing things. No more fishing. Throwing balls. No more. It’s all gone. Poof. 

No more running to the store for me 
or bringing me flowers. 
No more birthday gifts and special cards. 

Everything is gone. 
We have left a shell of a man 
who is daily depressed. 
And no one can say it will be ok 
because we all know it’s a lie.  

And all I want to do is 
hide from the world. 
But I can’t. 

And his boss wants to terminate David
because he can’t come back to work 
and he is not going to pay him 
a severance package. 
Don’t get me wrong, he was generous for the three months David was in the hospital. He paid him for jobs he started but was unable to see through to the end, and he also paid out of his own pocket, generous donations to GoFundMe. And we are grateful. It’s just that we were hoping for a severance package since David is unable to continue his work, and they have not, as of yet, offered him a position he could do from home. 

Social security 
is dragging their feet. 
Now we have to go to the doctor 
to get a breathing test 
that will cost over 500 dollars, 
that we really can’t spare, 
just to get the test for social security. 
And then they will send us another letter 
of something else they need 
after we jump through all their hoops. 

This must be what hell feels like. 

I’m so full of tears 
that if I let go 
I would probably cry a river, 
and drown. 

It’s quiet. 
The only time of day it’s quiet. 
Early morning. 
And Its Shabbat. The silence is so loud. 

My name is Bruce. And I’m bringing u down. 

XO 
Shell 

Saturday, May 26, 2018

Visits

As for visiting David, 
people who have called and want to visit, 
I have encouraged them to 
FaceTime him on this number: 
469-510-9650

It’s not that we don’t want visits. 
But it’s just the way it is for now.
He is still recovering.

The best times are between 3-5. 

XO
Shelli

PS. Family excluded. 

Thursday, May 24, 2018

Hannah, the brave


Hannah watson

May 24, 2018

Honors class essay 


Someone once said,

“Courage is not the absence of fear; 

but action in the face of fear.” 

There are a lot of different types of fear— 

but the worst is a prolonged fear, 

waiting for the other shoe to drop—

for the seemingly inevitable to happen. 

It grips you in the gut

and won’t let go. 

It washes over you like a dark cloud, drowning any bit of happiness. 

You feel like you are being 

shoved underwater

and your lungs are bursting 

for a fresh breath of air. 

And yet, 

somehow, 

one finds the strength to continue


Somehow in the face of terror 

we walk on. 

It feels as if we are stuck 

in an alternate reality; 

a place in between the present and the future. An alternate universe 

in which what is down is up, 

and up is down. 


I have found that

true strength is often hidden from view

not revealed until it is needed. 

It then leaps forth

allowing us to do things 

we never even imagined we could do. 

Lying dormant 

for all the time when we didn’t need it…

and then it is here, 

when we least expect it…

Pain and fear 

are often debilitating emotions, 

but strength trumps both

surrounding them in a 

protective cocoon of armor. 

When we go through hard times

the pain and fear come in waves, 

but the strength is there,

underneath it all. 

Undying; Unflinching;Unmoving. 


Three months ago, 

my dad became very ill. 

He was taken to the hospital 

where he was put into a coma. 

My dad is tough. 

Being an Ex-Marine, 

he is not a baby when it comes to illness, 

but this time was different. 

He is the rock in our family. 

The only one to work, 

the person who takes care of the bills 

and the checkbook. 

He always makes sure we are 

safe and secure and happy; 

taking any unnecessary stress upon himself. He is the most selfless person I’ve ever met. 


I have never been more 

afraid than I was that day 

when he went to the hospital. 

It was the worst fear 

I had ever experienced. 

It lasted and lasted. 

A feeling 

deep in the pit of my stomach 

grabbed on, and wouldn’t let go. 

It seemed like stepping outside of oneself

The pain didn’t seem real. 

This was not happening. 

It couldn’t be

I remember when he was in a coma, 

on life support. 

I could hardly even look at him. 

It hurt to see my dad like that. 

Bigstrong, brave dad. 

He was none of those things. 

He just laid there in bedasleep;

a shell of his former self. 

Tubes sticking into and out of 

everywhere imaginable

looking so fragile, 

weak 

and sick. 

His breathing didn’t look normal. 

Mechanical ventilation 

made his chest move 

up and down 

in jerkyunnatural movements. 


Three months later, 

he finally came home. 

He is still so weak and fragile

Hcan’t walk for more than 

four to five minutes without oxygen 

and having to sit down 

and rest for a good ten minutes. 

But we are beyond relieved 

to have him home. 


People told me—

when he was so very sick—

to be strong. 

Strong for my family; 

strong for myself. 

But I felt so weak, 

and yet at the same time, 

stronger than I ever had before. 


was afraid, 

so immeasurably terrified. 

The strength that comes with the fear 

is a different kind of strength. 

It isn’t a loud cocky-strength

but a quiet confidence 

that builds up from the floor,

into the place you need it most. 


My heart feltand still feels heavy; 

shook to the core 

and broken into a thousand pieces. 

But I know it will mend, 

and the places it was broken 

will be stronger than it was before. 


The scars on my heart 

are proof that I have lived

and lived fully. 

Through this challenging time

I have learned 

that I am stronger than I think, 

and braver than I believe.


So here we are

Full of pain, 

hope, 

and courage…

and we go on. 

There is no other choice.  

 

Love, Mashoo


It has been 1 1/2 months since dad came home.

It is amazing that he is out of the hospital, but the struggle is far from over....
The hardest thing is seeing him constantly depressed because he can't do the things he used to. Another thing that is difficult is that we now have to do all
of the things that he used to(that we have no idea how to do): Paying bills, trimming trees, fixing stuff around the house, etc. Before, if the sink starts leaking
or the washer makes a funny noise, we would just say, "Oh, don't worry, Daddy will fix it." Now, even if the smallest thing happens, like the filtered water comes only
as a trickle, its like it's the end of the world. And even if we somehow manage to barely get it working again, the exhilaration lasts but an instant, because then 
he'll say something like, "Oh, I guess y'all don't need me anymore," with a wry smile. 

It is also trying to see the big, strong, dad I remember having difficulty just walking down the hall. When we were younger, we couldn't wait untill we could beat 
daddy in an arm wrestle. Now that we theoretically can, it's just depressing. When I was 14, I went through a huge growth spurt; the problem was, I still thought
I was little and I would try to lean on mom or Hannah sitting on the couch. Mom would say I was a Great Dane who thought he was a puppy. The only one I could lean on
was dad, and because of that I never wanted to outgrow him; now I can't lean on him without hurting him or making him uncomfortable.

All that said, there are always going to be trials in life, and the only thing we have power over is our attitude. And all of the aforementioned trials are
nothing compared to him being in the hospital, and doctors saying, "He could die." Overall, he is making good progress and I am happy that he is home, and making a full 
recovery. 

-Matt

Friday, May 18, 2018

Role reversal of sorts

Someone asked David
‘Why aren’t you depressed?’

He is.
But he puts on a good show 
that he is strong.
And he is strong, 
don’t get me wrong. 
But, yes he’s sad. 
Who wouldn’t be 
under these circumstances. 

This week,
he took over homeschooling.
What a load off my shoulders.

If we put them in school,
can you imagine
ALL THE GERMS
they might bring home.
And, frankly,
David is so frail
that we cannot risk that at this point.

And so now,
he is the homeschool dad.
And he has ALWAYS 
wanted to have a stronger role 
in this area. Now he gets his chance. 
And may I just say?
He’s amazing at it!

Someone asked him
‘Are you smart enough
to teach homeschool?’

Answer?
No.
Nor am I.

But we have excellent curriculum,
the internet,
and children who love to learn.

Our main job
was to teach them
to love to learn.
CHECK.

They do.
We put things before them?
And they go forward.

Are they smarter than us?

YES! Thank G-d!

It had been our desire all along.

Do they have more wisdom than us?
No.

Hands down,
we have them beat at life experience.

So we help each other.
And they are ok with that.

They teach us the smarts?
We teach them the wisdom. 
Sounds a little illogical.
But, hey, it works.

David taking on homeschool means
I can actually accomplish my goals
and have some change left;
more time for library trips,
cooking and art lessons,
reading aloud and
creative writing with the boys.

David is in charge of
Math
Science
History
Internet/computer
(Khan Acadamy.com)

And he keeps us in line; 
reminds us of important things; 
and is focused on getting better. 

I have never felt so much love 
in my entire life. 
The man is devoted. 
No doubt. 

We need him. 
He has purpose. 
Life isn’t over, 
it’s just new a beginning.

I have extra time I need
for money management,
lawyers,
doctors,
health
and meals, etc...
and extra curricular with the boys
that I have always longed to do
but find it hard
to make the time
on an average day.

David is exercising as much as he is able,
and yet his countenance is sad.
It hurts to look at him.

Choices.
We can either turn away
from things that hurt,
or we can embrace it.

So easy to turn away.
And I can’t say
that turning away is very tempting.
But, I am trying to embrace it;
be ok with it, etc...
we ALL are.
We want to fix him. 

Who doesn’t want to
‘fix’ that which is broken
without calling the handyman,
so to speak.

It’s the one thing
that crushes my heart.
To be there for him
without having the answers...
ya, not comfortable.

I am learning how to embrace it, 
because, I love,
I’m tenacious, (David says so...)
And I do not give up. 
Not even a choice. 

He has never given up on me.
He has lead the example.
And I am determined to give him
As much as he has given me.

An impossible feat.

But I will spend my life trying.

Imagine, if you will,
being the most amazing guy ever,
providing for your family
and being their stability
and their all
and then suddenly
without any notice,
not being able to take back the reigns
after being incapacitated.

If you see him smile or ok?
Ya, it’s him accepting his predicament.
Does he always show this side?
No. Not to the ones he can be himself to.

And to say there are no dry eyes
on any given day
would be an honest evaluation.

Not much has changed.
We are just all trying to adapt.

But, it’s much better having him home.
Much better...

However,
His sad eyes
crush the toughest soul.
And through his happy smile
and sparkly eyes?
There is sadness.
Don’t let the happy attitude 
deceive you.

We are all still learning.

BTW He is still 
the most amazing guy I know; 
hands down!

Ps
No disability check yet.
May doctor visit and X-ray coming up.
Hannah is signed up for fall classes.
Matt is practicing SAT so he can have the chance to get a full ride to UTD.
Hannah in the process
of requesting scholarships
based on her grade point average.(4.0)
And did I mention?
All her teachers love her.
It’s not surprising. She is an amazing girl. And jono?
He has much more of a chance for greatness with Daddy in charge of his education.
It’s so comforting
watching them learn together.
And jono gets to practice cooking with me.
He will be an amazing chef one day!
His wit and charm
Brighten the cloudiest day.
But even he has sad days.
He is most like dad
And can hide his sadness
behind his twinkle.
But momma has super power vision.
Not much gets past me.

Never mind.
It does. I’m slow.
But eventually I get it.
I hate that I’m slow....
Better late than never?
I hope that counts.

PPS
And me...I’m hanging in there.
I am having some back issues
and trying to take it easy,
as much as I am able.
(Debilitating pain some days...)
My family is amazing.
I don’t have to do everything.
We all share the load.
What would I do without them...
And on we go.

Thank you for you.
Happy to not be alone.

Back to work.
XO
Shelli.


PayPal Pool For David’s Recovery

Monday, May 14, 2018

Note:

Yesterday we learned that GoFundMe was charging people 15 dollars to donate! We were shocked to hear it and are so sorry that happened! We made a PayPal as a replacement for the GoFundMe and attached it to the upper right side of the blog page. Thank you to everyone who has given and has continued to give. We are so grateful for you. And to everyone who gives words of encouragement and calls/texts just to let us know you are here, we love you so much! Thank you!
Hannah

Every second counts

Jono’s birthday
was the first holiday 
we could celebrate 
at home; with David. 
Several days before 
he came home, 
both Matt and Jon 
were at the hospital, 
while Hannah and I 
prepared for David 
to come home. 
We also prepared 
a birthday celebration 
unbeknownst to Jon. 
He is a fan of Star Wars 
and so we went all out with that theme. 
Hannah made a cake 
in the shape and design of BB8, 
while I blew up balloons 
and decked out 
the dining room.

A welcome home 
AND a birthday. 

What a happy day...

Now 
we have 
celebrated another; 
Mother’s Day.

Matt grilled burgers. 
Dad taught him
how to do it 
from a safe distance. 

A good teacher 
PLUS 
a willing son 
EQUALS
AMAZING BURGERS!

Hannah decorated;
boys assisted. 
A beautiful transformation. 
Sparkly lights, 
balloons, 
sari’s, 
and all kinds of stuff 
in our decorating box. 
The best thing of all?
He’s home. 

I closed my eyes 
and wished for
many more 
holidays
with him.

Not a lot of change 
since I last wrote. 
He is able to walk 
a little farther 
before sitting down 
and turning his oxygen up. 

It is a pretty scary thing 
because his oxygen levels 
don’t just go down, 
they plummet. 
So we have to 
monitor his 
every step. 

I took him to the park 
on Saturday 
while Hannah 
was at work. 
Matthew was in charge 
of the wheel chair, 
I was in charge 
of the oxygen 
and Jon was in charge 
of the cane, 
water bottles,
keys and such....

David walks. 
His oxygen goes down 
after several minutes. 

There are 
60 seconds 
in a minute 
and he does 
accomplish a lot 
every second.
Besides,
it’s way more 
encouraging 
to count in seconds 
than minutes at this point. 

Sometimes he can 
walk 120 seconds
before sitting down. 
180 seconds 
on a good day.
Then he sits down,
turns up the oxygen,
catches his breath 
and restores his grit.

The bridge 
at the park
was within eye view 
from where we started.

It was obviously his goal, 
because when we had to stop the first time, 
he told us to push him to the bridge 
instead of walking to it.

We stopped right before the bridge 
and he started towards it. 
He stopped in the middle 
and with more than just a small amount 
of gumption, 
tried to rest his arms on the rail 
and after a few tries 
was successful. 
Seconds are long for us. 
It’s what we have. 
Enjoy every second 
now makes sense.

The thought occurred to me 
‘what a great photograph 
this scene would make’ 
but I was holding the oxygen. 

I was able to just 
enjoy the view, 
which was way better. 

His salt and pepper hair 
blowing in the wind, 
his arms resting 
on the rail, 
him taking in the view 
of ducks, 
turtles, 
fish 
and water...
beautiful, rippling water, 
with the sun shining down on it 
making sparkles.

I think he lasted 180 seconds that time
before he had to sit back down in his chariot.  

He walked a little more 
but was worn out 
and we had to push him the rest of the way 
to the car. 

Good days and bad days, 
happy days and sad days. 
But they are with him...
And even though 
this is a really a hard thing,
we are together;
counting seconds,
pennies,
and anything else 
that sounds better 
with more zero’s added.

XO
Shelli