2/1/2018

Today...
Hmmmm
My darling man
Disoriented
Unable to communicate
Cannot move his
arms
Hands
Legs
Feet
He has a long road
ahead of him
The tracheotomy is still much needed for survival.
They are in the
weaning process,
where two times a day
they turn back the amount of air they are giving to allow him to breath and workout those muscles.

He was not as animated or smiley today. I meant to take a picture, just to keep track of his progress day by day. But I was too consumed with trying to communicate with him and be his voice.

I did not want to leave today but I did stay till 7 to meet the new nurse and build a rapport right off the bat. I will need to do this every time. I am also meeting the charge nurse every day to make sure anyone who helps him knows his many limitations at this point.
Yes, they should already know. But sadly things get overlooked. They have a lot of other patients to help and I get that. Just trying to cover all my bases.

I call at night several times to check on him and then again in the morning before I head out.

The other day, I called and asked his nurse how he was doing. “Oh he is just chilling and watching some TV.” Umm, no he’s not, he doesn’t have his glasses.

And various other scenarios that make me want to pull up my bootstraps and kick somebody.

And so, I leave ONLY AFTER everyone caring for David sees my face and knows me. I turn on my Texas charm and make them my allies. Because I need allies. We are talking about my man here.

And for you to understand, David is still very sick. So please continue to pray for him and think of us. We need lots of allies here, from all corners.

Love love
David’s shelli