Peace of mind..sort of

Sorry for the delayed update. The past few days have been pretty overwhelming.

I don’t have a lot of time right now, but I did not want to leave you hanging.

I learned my rights as a patient advocate on my own. I discovered medical lingo that I can pull out of my deck of cards to bide time.

One of which is ‘I do not feel your discharge plan is acceptable. And many things need to happen before we are discharged.’
It quiets them for a while.

Our status for long term  disability is pending.  Our status for Medicare is on hold until the Doctor fill’s out a form that we have not received yet.

The Doctor is the one who brought the form up and told us not to go through the nurses but to give it to him and he will take care of it.  Because of David’s status, he is pretty certain that it will be approved.

Normally, Medicare is for those over 65, but sometimes, in extenuating circumstances, they approve Medicare for those under 65.

It will take a while for any of it to be in effect. But it is in the process. It could take as long as six months.

Davids lungs are very scarred. His quality of life could very well be affected.

The doctor said,’Will be affected.’  But there is always hope. And I still have a little for the moment.

It is possible that at some point he will have to get a lung transplant.

The doctor said,’probable.’ But there is always hope, right?

It will probably take him the whole year to recover. The doctor thinks his quality of life will be very affected.

And although he said many negative things, we know, without a doubt, that he has our back. He says we aren’t ready to be discharged yet.  Peace of mind...

I’m glad the transitional manager doesn’t have the final word.

David looked good today. His cheeks had color and his eyes sparkled. We are almost at the end of this chapter and on to the next.

I toured a rehabilitation hospital today. It was really nice. It is possible, if Medicare is approved it will cover thirty days and then  after that we would only pay 20%.

Hopefully he will only need a month. I don’t see why not. He will get two to three hours of all the therapies (speech, cognitive, and physical)

And hopefully we will be approved. The process can be quite long and we may have to come up with the money in the interim.

Whatever we have to do, we will do. He will get help one way or another. And I just have to believe everything will be ok.

Thank you for caring and praying for us. It means so much. I want to write more, but I am so tired. I just wanted to make sure you had better news than the last post.

Everything is going to be fine. I’m going with that.

XO
Shelli

Ps.  After rereading this post, it seems very  scattered and I repeat myself. I also accidentally ran two red lights today. I think I need to close my eyes...