Eating and Drinking and Being Happy

Shielding David from the truth only lasted one day. The very next day, he passed his swallow test and was in much better spirits. I thought I had updated that I told him everything. Sorry for that.

Yes, it was a blow for sure. But we are all carrying the burden now together.  And things are going to be ok.

He was really so down before passing the swallow test.  But now he is in much better spirits and has more of an incentive to really give his best.

We were with him today. The food issue is challenging. I’m confident in the food he needs but it’s not very easy because they don’t have a refrigerator for us to use. So we bring small portions daily.

Today he had two peeled apple slices with almond butter.
Two tablespoons of dry cereal with rice milk after being soaked until it was soggy.
Blueberries throughout the day.
Plant based protein drink.
Two bites of sweet potato
He eats small portions five times a day. I leave him with easy things to eat when we leave. Applesauce, protein drink thickened, blueberries, etc.  things non-perishable.

He doesn’t have much of an appetite. But is very eager to eat nonetheless,
Only to be full after one or two bites.

He’ll get there.

He didn’t feel well today, so he ate even less. His chest was hurting and his breathing was shallow.

A respiratory therapist who works in NICU helped him today. She had never helped him, but oh I wish she was the only one helping him. She was gentle and kind. She didn’t hurt him and explained everything as she went. She didn’t rush and she really gave David peace of mind concerning many things.

We laughed and talked about our puppy and kitty antics and things we laugh about when we are sad to try to survive the moment. We tried to go home for an hour but just lingered and laughed about good times. It was fun and happy and peaceful.

I find myself assuring him everything is going to be fine. He’s usually the one telling me that. Now it’s my turn. He looks worried and vocalizes concerns. And I say it’s going to be ok. It really is. Although on the inside I worry, too.

But what can we do about it?  Today is all we have and everything we needed was provided.

So, on we go. ;)
XO
Shelli

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