60 days today...
Thursday I came in to his room; a completely different story. They had just given him a
Peg Tubing.
>>>>PEG stands for percutaneous endoscopic gastrostomy, a procedure in which a flexible feeding tube is placed through the abdominal wall and into the stomach ...<<<<<
I was not prepared. Just the day before was so great! And today? Not so much.
This is our life. Up one day? Down the next.
And so far, it doesn’t get any easier.
Another setback, that will help us go forward. But a setback nevertheless.
It is so hard to see him this way.
Before they decided to do a PEG tube, they gave him another swallow test to see if he was ready for food yet. His hopes were high. I knew he did not pass just by the look on his face when they were wheeling him back in his room because there were no pop a wheelies or confetti.
Cherish the good days; make much of them. (I say to myself) but those heartsinking moments of despair always have a way of seeping through; a constant struggle.
And, for some reason, this song comes to mind. Something to hold on to...or up.
Hold your head up, woman
Hold your head up, woman
Hold your head high.
(I will try)
XO
shelli
I had started to laugh at his animated faces. Great faces with the matching captions. And then I read what was beneath. Ohh:( Day nab it. Such a rollercoaster of good things, bad things,emotions,worry and stress especially for David and you. Him living it daily and you seeing and going through it with him daily. Loving and thinking of you both daily. Trish
ReplyDeleteTrishypoo! Thank you for thinking of us, we all love you so much. Every day however hard it is, is only bringing us closer to the day he is better.
DeleteI love the picture too! Love his animated face. We need all the smiles and laughter we can get.