Five minutes and happy thirty days home!

Almost ready to go home. April 8.  Discharge day. Jono’s birthday!  

Could life get any better than that??

Almost 30 days home.

May 8, thirty day anniversary.

So GLAD to have him home. 

He can stand up for almost five minutes.

He can walk without assistance. (mostly)

(for five minutes)

He can eat at the table. (mostly) 

(For five minutes)

Sitting upright is a struggle after a while. 

(After five minutes)

He still needs oxygen 

walking, 

standing, 

and 

sitting upright. 

(After five minutes)

After five minutes, 

his oxygen drops 

to almost dangerous levels. 

When he reclines, he is ok. 

When he lays down, 

he is not 

and needs continuous oxygen 

through the night. 

But he really has come a long way. 

While in the hospital, 

they did physical therapy 

one to two times a day. 

And he was on continuous oxygen. 

At home, 

he gets physical therapy 

all day just by doing daily things 

PLUS 

your ‘politically correct’ physical therapy.
And we monitor his oxygen. 

All day. 

Notice the new fashion oxygen purse that he now carries on his own, most of the time. 

We are very proud of him. 

XO

Shelli

Ps. Weight on discharge day: 143

       Weight today: 150

I think he likes our cooking. 

(Chef Jono, Matt, Hannah, and me)

Ps. At night, his oxygen tube comes out while he is sleeping and there is no way of monitoring that. I wake up often through the night making sure he is breathing, his oxygen levels are ok and if the oxygen had slipped off. 

I have found one solution of monitoring his nighttime oxygen. It costs $200.00. 

Is there anyone else who knows 

of how to monitor that less expensive?  

Thank you!  XO