Thursday, April 26, 2018

White Noise

White noise

At night, David comes
to our room. (Yay!)

My new spot
is in the middle.
Although my old spot
has an indention of me.
It was comfortable
and cozy.

The middle
will soon have
indentions of me;
I am breaking it in.

David is on oxygen through the night. The machine has its own song. It sings us to sleep.

White noise.

I am almost always
not tired when he is,
but I try to be.
And the ‘white noise’
helps.

Today I moved the humidifier into our room, because he uses the most oxygen at night. 
It is very drying to the nasal cavity. 
And a humidifier 
brings a little more humidity to the air.

There is a small door on the outside 
that can hold a cotton ball soaked 
in essential oils. 
So he gets ‘healing humidity.’

We are all so tired still, 
despite a full nights sleep.

The house is a little upended in several places, but we are slowly finding a rhythm.

We are getting there.

I spoke with David’s pulmonary doctor yesterday. He had looked over the recent
 X-rays, and wanted to let us know that there are a few air pockets in the right lung.

Nothing to necessarily be alarmed about, 
but we will most assuredly 
have to get consistent X-rays
to make sure things
are at least the same
and not worse.

He has been
more tired than usual.
And we all encourage him to 
close his eyes throughout the day.

Rest equals recovery.
And we are 
great fans
of rest.

More to say. No time to say it.

However, 
thank you ‘person’ 
who gives consistently to the
‘go fund me’ once a month.
Every time I see your name, 
I cry and think... 
thank you for taking a little pressure off; 
it helps more than you know. 
And I haven’t seen you in so long 
but when I think of you I smile. 
And I think, wow... you love us.
THANK YOU!

To the ones who consistently comment, email or text... thank you so very much. It lifts us up every time; no joke!

To the one who gives twice a month...
Flat out beyond thankful. 

The temporary disability was supposed to continue for ninety days, 
however it stopped at thirty days. 
We have been trying to deal with that. 
You pay for insurance 
and then when push comes to shove, 
as my mom says, 
you can’t suck blood out of a turnip. 
As I write that I’m thinking 
it’s so graphic 
and commands a second look. 
It certainly lives up to that!
(She said, whaaat???)
Hopefully they will make good
on their part, SOON. 

Four weeks without a check 
from temporary disability. 
And waiting on SSDI approval. 
Every little bit helps 
and we want to make sure you know
how very grateful we are. 

To the ones
who are quiet
and in the background, wishing us good?
Thank you.
I am always surprised when someone says
‘we are reading the blog everyday.’

I’m like, how did you even know?!?!

And it gives me breath...

I am missing something,
I know.

Please don’t feel overlooked.
My brain is full
and it’s hard to remember all the kindness,
but in the moment of kindness?
I am so overwhelmed
and thankful.

XO
Shelli





Sent from my iPhone

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