Wednesday, April 18, 2018

Close eyes; relax.

Close eyes; relax.

Trying to finish the paperwork for SSDI (social security disability)
Not sure what the i stands for. (Insurance?) of course they need MORE information than we already gave. Another delay in pay.

It’s beginning to be very uncomfortable watching the money dwindle away.

Trying to do this...
Trying to do that...
Never ending things to tend to.

We still have personal items from the hospital that we accumulated over the three months we were there that have yet to be put up.

We made a big dent
on Sunday.
Living in a
1,000 square foot house with five people
has its challenges.
When everyone leaves three things out at the same time,
three times a day;
not to mention the piles of things that still need to be sorted through....
It can seem overwhelming.
Scratch that...
VERY OVERWHELMING!
But those things have to be put at the bottom of the list, because David is first right now and still needs quite a bit of help.
Although he is coming along!
Slowly
But
Surely.

On a normal pre-hospital day, we have a morning routine. We take a lunch break and maybe run an errand, and then at 3pm, we have what we call a ‘white tornado’ where everyone goes and tidy’s up, and in thirty minutes, our home feels calm; happy; restful; etc...

Some days I call a ‘black tornado’ meaning, we have missed way too many white tornados and we need more than just tidy.

As of late, I only call black ones, because I miss so many days and things become upside down.

David having another pneumonia really through us off balance, not to mention the unexpected money that we had to pay for UrgentCare2go (79.00) and the X-ray (400.00) and antibiotics.
We are trying not to panic, but it’s hard. Things are so, ‘what will happen next?’ And ‘when can we have consecutive days where all is very well?’

It is what it is. And we are hanging in the edge of our seats.

We are having the medical supply store pick up the bed tomorrow. David is graduating to his own bed. I am more than a little happy about that. Trying to grab and hold on to all happy things.

Hannah made Daddy’s birthday meal tonite. He was so happy! Another happy.

We had a follow up visit with the ‘house dr.’ again today. He is feeling a little better. Five more days on the thousandth antibiotic. May it be the last time he ever needs it. Or at least help him to recover and restore all the good bacteria and to live in that ‘good’ for a good long while.

We are tired.
I’m still hoping
for a slow
and quiet week
soon.
Maybe next week.
It is my deepest wish.

Slow, quiet, steady..
Time for yoga.
Having a plan for dinner.
Opening windows and letting fresh air in.
Spending time outside.
Finding the good in each day 
and celebrating it.

XO



1 comment: