Friday, September 6, 2019
The end
Tuesday, June 18, 2019
Hannah's thoughts
Sunday, May 26, 2019
Post Post Script
Wednesday, May 22, 2019
David says,
“Just stop writing the blog. It’s so sad and people will think we are still falling apart.”
And, I’m like, “We ARE still falling apart.”
And that’s just the truth . It is what it is. The reality of his disability is really hard on David. He tries to do things and realizes he can’t. He really is the most determined man I’ve ever known. And we have discovered even determination has its limits.
And we watch him suffer and persevere, but also see him feel hopeless at times, crushes us because there is not a damn thing we can do about it.
Did I say my job is kicking my ass? Probably. I repeat myself often, I know. Same old story.
I like it but it is quite hard on my body. I have moments of, ‘This ain’t so bad. I love helping people,’ to ‘crying because I am so tired and sore.’ But this too shall pass.
So, because we reached out to a few senators, it looks like we have gotten a chance for our hearing before the Judge moved up. After the hearing, which is not set yet, it will be another six months before disability actually kicks in.
I think about things sometimes, and tears are easy. The government wants us to lose everything before they do anything??? #%>>€€%##<<€€€€€>~~|#%€€€£><%*+!>,?
We are busy going through things, getting rid of, repairing things that we can, so we can sell the house, move into an apartment and live off of our equity.
A new start. Scary. But maybe a change of scenery will help us overcome better.
If I repeat myself, I apologize. But there are two people who have given to us consistently, and without it, I fear to imagine our fate thus far. It has been life-saving and thank you’s seem so shallow. But it’s all I got.
So, as much as I want to quit you, blog, I still have voice. We still cry. We still ache. It’s getting old, but beyond...there is light, because sometimes I see glimpses of spark.
I love you, to those who read, and ache with us; and send us happy thoughts and send us hope. Thank you. Not a shallow letter in those words to me. It runs deep and I wish I had more eloquent ways to express. But I’m too tired to think something up. Lol
XOXO
Shelli girl for us all
Tuesday, May 14, 2019
Freaky Friday on Steroids
David and I don’t get too much me and him time. It may be we are avoiding it. All we do is fuss and cry because he wants my job and I want his.
It’s still just so uncomfortable. And my job is very physical. I am soaking wet when I come home and I never used to sweat.
I make 1/4 of what he made. My contribution feels so unhelpful. There are two people that give month to month. But we can’t count on it. It’s a surprise every month. And it’s just presumptuous to except it. But it has been our life-jacket every time.
I would love to say everything is wonderful and I am loving the work. One day, yes, one day, may it be so.
We are here; healthy as can be. And the mortgage is paid this month. Day by day. Month by month. This is how we live. I personally want to sink. But I love too much to desire such a thing.
And my heart. It aches. Spiritually; physically. What a scary thing.
...
Friday, April 12, 2019
At least...
Two weeks down. It is hard work. My body feels pain like I’ve never felt before. I know it’s like exercise; eventually I will get used to it. I do love the people I work with AND love the work. It has been so exciting working in downtown. One Arts Plaza is my main office but now I will be at the Arpeggio most days, checking in some days at One Arts. I have clients Tuesday thru Friday. Monday’s are meeting days at One Arts. They start at 11am. So it’s a weekend continuation somewhat.
Oh, the weekends... sweetest ever. Resting and enjoying time with my people. Weekends....are really weekends again.
There have been so many ups and downs these past few weeks; it’s an adjustment for all of us in so many ways.
At least David’s alive.
At least you have a job.
At least you still have your home.
And on and on and on.
And YES, these things are so very true and of course we are very grateful for the ‘at least’ things.
But it is still an enormous mountain. And every morning we rise and climb; like everyone. Right?
Still, so many tears and losses; grief; adjustments...
I keep thinking, ‘If we can just get through this year, we will be ok.’ But then as those words leave my mouth and my ears hear... I realize, rather, ‘If we can just get through this day, we will be ok.’
Oh, but the weekends. I can see myself living for them. Everything stops for a moment and we all have time to regroup and breathe. And it feels so healing.
Sunday, March 31, 2019
Sunday, March 24, 2019
A watched hole never shrinks
Full benefits; I pay nothing; Full means Full; 4 weeks paid vacation yearly; 401k match; omg, my jaw is on the floor and I can't even remember all the other little perks of this job. It pays well and they give me a stipend for both gas and phone.
This is good news. It is. We are all excited. Sadly it is still an adjustment for us all at how different life is. I recently heard someone talk about grief like a large hole that can't be filled, but over time it grows smaller and it becomes easier to be happy. That's how we all feel; this big hole of grief that is there and hasn't seemed to shrink much.
We had to get my car worked on before I started the new job and found out we need about $2,000 worth of repairs done, but we could only repair $500 worth. Our mortgage went up again. The 401k David cashed out is at a very scary low and NO Disability has not been approved yet.
I am starting my new job. It will take time to build up momentum. I see a little light at the end of the tunnel. I have no idea at this point if we will be able to keep the house. I just have no idea.
But, yes, I have a job. And I am very excited to start. The heaviness of being the provider is still overwhelming. I know it will get easier, it's just not yet. I don't like writing in the blog anymore because I can only imagine in my mind people thinking 'Grow up, girl!' 'Grow a pair.' 'Stop all your whining and complaining.' 'Get on with it already.'
And I want to. I really do. I have spent the past 25 of my years giving to my family; making sure everything runs smoothly. Homeschool, meal-planning, budgeting, creating a home... Now when my family needs me the most, I am unable to be here, because I need to work. That's my part now. I get it. But it still hurts like hell. And we are still on the verge of losing a lot more than we already have.
David is as good as he can be, health-wise. However, his spirits are quite down most of the time. And that freaking hurts like hell watching him be so sad. It really sucks. There is no lack of trying to make life happy; believe me. But the hole; it's just there, taunting us.
But I have my dream job. A job I was made for. A job that gives me great joy to do; helping others behind the scenes; making their life easier. This is a corner turned, for sure.
Today has been a busy day getting ready to start my week. Making sure no one has more than they can handle and 'overseeing' the budget and meal-planning to the best of my ability, keeping the home running smoothly, keeping things clean; assigning tasks. It takes a family.
Tuesday, February 19, 2019
Executing lofty goals, updates, and a variety of newsy news
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Me and my dog |
Wednesday, January 30, 2019
Monday, January 28, 2019
Hashtag It be like that sometimes.
Sorry for the delay...
Did I mention that when we were denied ‘again’ this last time the lawyers said it will now take between 18-24 months?
Is the purpose for that,
to lose everything and be homeless? Lol
I have been working for the Instacart shoppers app. It pays well, if you can shop for more than one person at a time but they aren’t consistent in doing that.
I make between $10 to 15 an hour.
Rewind...I was laid off from my job. That’s why I have been working for the shopping app. I made some adjustments to my resume and have been sending it out left and right.
I have also been doing some transcription and tutoring online until something better comes along or if I can actually get some sort of freelancing business going. I’ve been researching.
David is quite down and feels worthless. And I say, ‘You are alive and we need you!!!’ And I tell him everything he DOES do; is ABLE to do. Sometimes it works. Sometimes not so much.
There is something called a ‘compassionate allowance’ where if we can prove he is disabled or...you know what? I really don’t know how it works but I asked David’s Doctor if he would write a letter concerning David’s condition.
The lawyers are always saying that David needs to go to the doctor every month to help his case. They referred us to Parkland health insurance where the cost is lower but we have been jacking around with them for months. Also, David’s Doc is a pulmonologist and has told David that he can’t just go see any Doctor. Our regular doctor won’t even take him on.
His doctors discounted rate for him is $300.00. And he has also said it’s not necessary to come in every month.
(To help us financially!!!) There is nothing he can do. There is no medicine
to take.
He has triaged David
over the phone
a few times
and called in antibiotics.
So his doctor
is also going to
say that in the letter, too.
When I talked to him last week...
he’s really adorable...
he said,
‘I mean, I’m going to say he’s disabled. He needs oxygen. There isn’t anything more I can do unless he gets sick.’
He scratches his head
right along with us concerning all the
fracking rigamarole.
I am going to make
a profile website
and post it here
as quick as I can.
Maybe there are things
I could do
for those of you
still reading the blog.
I will give you a discount! Lol
I will post my skill set.
And if you are able to promote me to others,
I would so very much appreciate it.
It’s really getting scary.
I think
I try not to think about it
and just convince myself everything is going to be ok. But is it? Is it really?
I’m still going to
just believe it.
G-d loves us, right? Lol.
We know He does,
we just have our moments.
Have you seen the movie Evan Almighty
with Steve Carroll? Everything that could go wrong with the main character goes wrong and then more.
‘God’ Morgan Freeman
told him that it’s because He loves him
that He is
doing these things.
And so,
one scene is where his family is leaving him
and he walks outside
trying to get them to stay,
to no avail,
and the
automatic sprinklers
come on.
And he goes,
‘G-d,
could You just love me
a little less?’
I think of that often.
Hannah is
continuing school
and loves it so much.
She is growing
leaps and bounds
into a most spectacular woman.
She is also
tutoring online
AND
working for UPS
to help with finances.
Matt started college
this semester as well.
He is in genius heaven. They invited him to the
AP courses
because
he did so well
on the entrance exam.
He is more than ecstatic
in a Matthew
sort of way.
And it is sssssooooo
Adorable!!!!
Paid ad by google:
If you need
your computer worked on, look no further.
Call 555-555-5555
and ask for Matt.
He is the expert
and has a ton of
five star reviews.
(Seriously,
if you thank it broke?
It prolly ain’t)
But seriously,
get in touch with me.
He can fix broken things
Like no other.
I homeschooled.
(I pat myself on the back.)
The kids
constantly think
they know more
than me
and smirk at things I say.
All in fun.
So I just tell them,
‘Hey,
I homeschooled you guys.
I think I may be
smarter
than you give me credit.’
And then I go along with, ‘I’m not smart’ and say,
If you think I’m not smart now, you should have seen me before I homeschooled. I was really not smart.’ lol.
(But honestly?
They do know more.
I have always
wanted them to be
bigger and better.
CHECK)
FAFSA has paid
For all of their tuition
and books.
No expenses whatsoever. And I am so happy for them.
Jono... omg that kid. He is going to make a YouTube channel and strike it rich! He is the wittiest little guy I’ve ever known. He keep us laughing. And his chef skills are awemawzing!!!
Thank G-d, so far David has not gotten sick. Little sick, here and there, but he has battled it off.
To those
who still think of us,
thank you so very much!
I will try to be
more faithful in posting.
And hopefully
adding a YouTube link
so Jono can entertain you.
And I will add
my profile page
to hopefully generate
more income for us.
We owe more
than I make so far.
I sure hope
that changes soon.
We love you!
Shelli girl
for us all