Shadows and sunshine
Friday, September 6, 2019
The end
Tuesday, June 18, 2019
Hannah's thoughts
Sunday, May 26, 2019
Post Post Script
Wednesday, May 22, 2019
David says,
“Just stop writing the blog. It’s so sad and people will think we are still falling apart.”
And, I’m like, “We ARE still falling apart.”
And that’s just the truth . It is what it is. The reality of his disability is really hard on David. He tries to do things and realizes he can’t. He really is the most determined man I’ve ever known. And we have discovered even determination has its limits.
And we watch him suffer and persevere, but also see him feel hopeless at times, crushes us because there is not a damn thing we can do about it.
Did I say my job is kicking my ass? Probably. I repeat myself often, I know. Same old story.
I like it but it is quite hard on my body. I have moments of, ‘This ain’t so bad. I love helping people,’ to ‘crying because I am so tired and sore.’ But this too shall pass.
So, because we reached out to a few senators, it looks like we have gotten a chance for our hearing before the Judge moved up. After the hearing, which is not set yet, it will be another six months before disability actually kicks in.
I think about things sometimes, and tears are easy. The government wants us to lose everything before they do anything??? #%>>€€%##<<€€€€€>~~|#%€€€£><%*+!>,?
We are busy going through things, getting rid of, repairing things that we can, so we can sell the house, move into an apartment and live off of our equity.
A new start. Scary. But maybe a change of scenery will help us overcome better.
If I repeat myself, I apologize. But there are two people who have given to us consistently, and without it, I fear to imagine our fate thus far. It has been life-saving and thank you’s seem so shallow. But it’s all I got.
So, as much as I want to quit you, blog, I still have voice. We still cry. We still ache. It’s getting old, but beyond...there is light, because sometimes I see glimpses of spark.
I love you, to those who read, and ache with us; and send us happy thoughts and send us hope. Thank you. Not a shallow letter in those words to me. It runs deep and I wish I had more eloquent ways to express. But I’m too tired to think something up. Lol
XOXO
Shelli girl for us all
Tuesday, May 14, 2019
Freaky Friday on Steroids
David and I don’t get too much me and him time. It may be we are avoiding it. All we do is fuss and cry because he wants my job and I want his.
It’s still just so uncomfortable. And my job is very physical. I am soaking wet when I come home and I never used to sweat.
I make 1/4 of what he made. My contribution feels so unhelpful. There are two people that give month to month. But we can’t count on it. It’s a surprise every month. And it’s just presumptuous to except it. But it has been our life-jacket every time.
I would love to say everything is wonderful and I am loving the work. One day, yes, one day, may it be so.
We are here; healthy as can be. And the mortgage is paid this month. Day by day. Month by month. This is how we live. I personally want to sink. But I love too much to desire such a thing.
And my heart. It aches. Spiritually; physically. What a scary thing.
...
Friday, April 12, 2019
At least...
Two weeks down. It is hard work. My body feels pain like I’ve never felt before. I know it’s like exercise; eventually I will get used to it. I do love the people I work with AND love the work. It has been so exciting working in downtown. One Arts Plaza is my main office but now I will be at the Arpeggio most days, checking in some days at One Arts. I have clients Tuesday thru Friday. Monday’s are meeting days at One Arts. They start at 11am. So it’s a weekend continuation somewhat.
Oh, the weekends... sweetest ever. Resting and enjoying time with my people. Weekends....are really weekends again.
There have been so many ups and downs these past few weeks; it’s an adjustment for all of us in so many ways.
At least David’s alive.
At least you have a job.
At least you still have your home.
And on and on and on.
And YES, these things are so very true and of course we are very grateful for the ‘at least’ things.
But it is still an enormous mountain. And every morning we rise and climb; like everyone. Right?
Still, so many tears and losses; grief; adjustments...
I keep thinking, ‘If we can just get through this year, we will be ok.’ But then as those words leave my mouth and my ears hear... I realize, rather, ‘If we can just get through this day, we will be ok.’
Oh, but the weekends. I can see myself living for them. Everything stops for a moment and we all have time to regroup and breathe. And it feels so healing.
Sunday, March 31, 2019
Sunday, March 24, 2019
A watched hole never shrinks
Full benefits; I pay nothing; Full means Full; 4 weeks paid vacation yearly; 401k match; omg, my jaw is on the floor and I can't even remember all the other little perks of this job. It pays well and they give me a stipend for both gas and phone.
This is good news. It is. We are all excited. Sadly it is still an adjustment for us all at how different life is. I recently heard someone talk about grief like a large hole that can't be filled, but over time it grows smaller and it becomes easier to be happy. That's how we all feel; this big hole of grief that is there and hasn't seemed to shrink much.
We had to get my car worked on before I started the new job and found out we need about $2,000 worth of repairs done, but we could only repair $500 worth. Our mortgage went up again. The 401k David cashed out is at a very scary low and NO Disability has not been approved yet.
I am starting my new job. It will take time to build up momentum. I see a little light at the end of the tunnel. I have no idea at this point if we will be able to keep the house. I just have no idea.
But, yes, I have a job. And I am very excited to start. The heaviness of being the provider is still overwhelming. I know it will get easier, it's just not yet. I don't like writing in the blog anymore because I can only imagine in my mind people thinking 'Grow up, girl!' 'Grow a pair.' 'Stop all your whining and complaining.' 'Get on with it already.'
And I want to. I really do. I have spent the past 25 of my years giving to my family; making sure everything runs smoothly. Homeschool, meal-planning, budgeting, creating a home... Now when my family needs me the most, I am unable to be here, because I need to work. That's my part now. I get it. But it still hurts like hell. And we are still on the verge of losing a lot more than we already have.
David is as good as he can be, health-wise. However, his spirits are quite down most of the time. And that freaking hurts like hell watching him be so sad. It really sucks. There is no lack of trying to make life happy; believe me. But the hole; it's just there, taunting us.
But I have my dream job. A job I was made for. A job that gives me great joy to do; helping others behind the scenes; making their life easier. This is a corner turned, for sure.
Today has been a busy day getting ready to start my week. Making sure no one has more than they can handle and 'overseeing' the budget and meal-planning to the best of my ability, keeping the home running smoothly, keeping things clean; assigning tasks. It takes a family.
Tuesday, February 19, 2019
Executing lofty goals, updates, and a variety of newsy news
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Me and my dog |